Muscular Dystrophy is a horrible genetic condition that Duchenne are working tirelessly to find a cure for. One of their events we have had the pleasure of being involved in twice now. Initially acting as a coach and trainer, for a friend. Then secondly, training a team of 6 newbie Cheshire women to complete this significant challenge.
London-Paris in 24hours “Oh forgot to mention by bike!”
May 13th sees the start of the 2016 Duchene Dash, London to Paris in 24 hours. Stretch-n-Grow Director Deno Davie will be competing in this event fundraising for the Duchene Children’s Trust. Fundraising is to fund clinical research and trials for treatments that will help this generation of children and young adults living with Duchenne Muscular Dystrophy. More
What is Duchenne Muscular Dystrophy? Duchenne Muscular Dystrophy (DMD) is the most common fatal genetic disease diagnosed in childhood. It mainly affects boys. It is classed as a rare disease, yet there are an estimated 300,000 sufferers worldwide.
Children born with Duchenne have a fault on their dystrophin gene which means they cannot produce dystrophin, a protein that is vital for muscle strength and function.
- Duchenne Muscular Dystrophy is 100% fatal – there is no cure
- Most children will be in wheelchairs between the ages of 12-14. Life expectancy is mid-twenties
- Every child ends up in a wheelchair by the age of 10 -12
- One third of all Duchenne cases are the result of random in utero mutation, with no warning until the child is born
- Approximately one in 3,500 boys are born with Duchenne Muscular Dystrophy
There are around 300,000 sufferers worldwide.
If you would like to be in with a chace of winning a new Pinarello bike worth £2300.00 then enter into our prize draw. Please Click here
